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March 2025 News!

INLB researchers in the spotlight!

Deafblindness is a disability that is little researched worldwide. As a result, it is poorly understood by professionals, decision-makers and the general public. Most research in this field comes from high-income countries. There is an urgent need for more research in low-income countries to better understand how disability interacts with various factors, such as poverty and social inequalities.

With this in mind, and as part of global partnerships for research and innovation, INLB researchers have received funding of US$100,000 to conduct a study entitled Growing up deaf-blind: a comparative analysis of case studies from the South and the North to shed light on the factors that contribute to achieving the United Nations’ Sustainable Development Goals.

The study will be carried out through an online survey and individual interviews that will explore the experiences of adults living with congenital or early-onset deafblindness in high- and low-income countries. The study will seek their views on various aspects of their lives, such as access to education, healthcare, rehabilitation and social services. The main expected outcome of this project is a tangible contribution to the achievement of the United Nations Sustainable Development Goals (SDGs), notably SDG 3 on health and well-being, SDG 4 on education, and SDG 10 on reducing inequalities.

The research team is led by Prof. Walter Wittich, and includes Professors Peter Simcock, Leda Kamenopoulou and Natalina Martiniello. We congratulate them and wish them every success in this major project.

For an overview of the project, watch this video.

Another stimulating exchange activity!

On February 19, we held our 3(rd) virtual exchange on Behind the Scenes with V-TeDDS. Our sincere thanks to Sylvie Cantin, who illustrated a concrete example with brio. Participants had the opportunity to exchange ideas and ask questions.

The recording of the meeting, the information documents and the summary will be made available in the April 2025 news.

Stay tuned! Another exchange activity will be held in June as part of Deafblindness Month! Information on this event will be posted on the Community of Practice platform in May.

At any time, you are invited to share your projects and winning intervention strategies with members of the community: .cdp.surdicecite.inlb@ssss.gouv.qc.ca

DeafBlind Ontario Services (DBOS) offers interesting online events. These events are open to all, but participation is subject to a fee.

Here you will find links to upcoming events

News from CRESAM:

  • Video replay of the CHARGE 2025 Syndrome Days

https://www.cresam.org/publications/actes-de-colloques/replay-video-des-journees-de-rencontres-et-de-formation-consacrees-au-syndrome-charge-2025

On October 10, 11 and 12, 2024, CRESAM organized meetings and training sessions on CHARGE syndrome at the CREPS in Poitiers.

Organized in partnership with the Association de parents d’enfants atteints du syndrome CHARGE, APSA, medical experts from Hôpital Necker-Enfants malades and the ANPSA association, these meetings brought together national and international doctors specializing in the syndrome (pediatricians, dentists, ENT specialists, psychologists), medical and social professionals, students, families and people with the syndrome.

Watch the video replay of the conference presentations.

  • Cresam took part in the “Sensations Réinventées: Dialogue autour de la Surdicécité” on January 29.

The replay is available with all accessibility tools on the collaborative platform: https://fisaf.idealco.fr/formation-publique/sensations-reinventees-dialogue-autour-de-la-surdicecite-537333

Why was this webinar a must?

💡 Understanding deafblindness: A challenge often overlooked, but crucial to better understanding.

💡 Discover concrete solutions: Advances and recommendations to improve support for deafblind people.

💡 Exchange with experts: a unique opportunity to ask questions and enrich your thinking.

 Did you know that?

  • This month, the COP blows out its 9 candles (2016-2025);
  • It currently has 291 members
  • CdP is international, with members from 11 countries;
  • The Community of Practice web platform was launched in June 2018, 7 years already!

Welcome to the new members of the deafblindness community of practice! Here is the link to become a member : https://cdpsurdicecite.org
A huge thank you for your involvement!